Today started off great! Our family went to the Walk for Healing Hearts. It's a simple 1 mile walk around a little park in Provo, UT. There where tons of people there walking for their loved ones that either have CHD or died from CHD ( Congenital Heart Defects ).
It was a little over whelming at first to see all these people there and know that each and everyone of them have been affected by someone who has had problems with their heart. Otherwise they wouldn't have been there. We saw many children with little heart stickers on their shirts to show that they are heart affected babies.
It was great to get to meet other people who are going through or who have gone through the same trials that we are going through. To know that we are not alone and that this doesn't have to be such a terrible and painful ordeal for our family to go through.
From this point on our family is dedicated to being at peace with our situation and making the very best out of it that we can.
They say when you life gives you lemons, make lemonade and that's exactly what we plan to do.
So, today was fun. We had a few family members show up. Some of which surprised me. Showing their support for Jaxon was:
Uncle David, Aunt Nancy and Family and dog
Grandpa Kirk and Grandma Linda
Grandma Jeanne
We all walked around ( some ran ) and had a grand ole time. At the end they had a small ceremony where they introduced the families that have lost loved ones young and old and then released butterflies up to heaven to give kisses to their lost angels.
We also took a moment of silence for those are currently at Primary Children's Hospital struggling to survive. Speaking of there where a few of the nurses from Primary Children's at the walk. It was nice to see them in a different setting other then at the hospital.
After all that was done we gathered around and they drew names for various prizes.
I highly encourage any of my friends and family to join that have a child who is dealing with CHD. I really believe that this group is going to be very supportive and uplifting for my family as well as for Jaxon. He might not understand now, but when he is old enough he will enjoy knowing that there are others out there with his same problem!
As for the rest of our day we are simply going to be lazy! This was Jaxon's first real adventure outside of the house and even though he didn't do anything besides sleep in his stroller, he is completely tuckered out and has been asleep since we got home.
I don't think I ever thought about what kind of things will be stressful to him that us is the everyday normal things.
Maybe a movie or something light that won't cause us to work any harder then we have too.
Hey it's the end of summer, no need to do anything stressful or crazy.
Saturday, September 12, 2009
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